Wednesday, August 15, 2018

Wednesday and Waiting

It feels a little like that movie Groundhog's Day around here, the date on the calendar is different, but the days all seem the same. We continue to wait for her heart block to go away. Every day seems harder and harder to have faith that her regular rhythm will come back.  An EP (pacemaker specialist) came in today to go over what life with a pacemaker looks like. Right now surgery is scheduled for Monday afternoon. It will be a 2 hour surgery with a 5 day recovery. They would open her chest cavity back up to insert the pacer wires directly to the heart and there would be a small incision under the rib cage where the pacemaker itself would go. It is different from adults because her veins are too little to send a pacer wire through. The battery life would last around 5-10 years (give or take) before they would have to do a procedure to replace the battery. It is an outpatient procedure. She also cannot do contact sports- so our dream of our daughter playing football is out the window. We also have to have extra check ups once a year. We would more than likely need to come back to Ann Arbor to do replacement surgeries while she is still a kid as they do not have a pediatric heart surgeon in Sioux Falls. Please continue to pray that her heart block goes away and she won't need a pacemaker.

7 comments:

  1. Prayers continue for your beautiful Willow!!!

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  2. Praying double hard

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  3. My big kids and I prayed for Willow at bedtime tonight. May God carry you through the waiting.

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  4. so love reading your updates and know you have not been forgotten but thoughts are sent to our God who does hear, heal and cure so frequently throughout the day. He is sovereign and promises his faithfulness to you both, to Willow,to Cale. I do not understand why willow is in heart block but I keep trusting..... Be Still Dear ones and know that I am....

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  5. Continual prayers for each of you. Phyllis

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  6. I’m up doing the night shift for willow praying .i guess it’s from the last year spending time in the hospital and wondering if anyone was standing in the gap and praying in the wee hours while we waited and waited in the hospital . Hold on His mercy in new and fresh in the morning I promise . Luv u

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  7. Praying so often for all of you! Is there any chance the Children's Hospital in Omaha could be seen for these checkups if Willow needs them in the future? The cardiologists from Omaha actually come to Rapid once a month and we are always able to be seen here in Rapid. Just food for thought. Hugs...Jen Gordon

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