Thursday Update

I'm so sorry I haven't updated. I guess no news is semi-good news. The last few days have really just been the same- relatively calm with incremental progress. Willow is doing much better. She is eating better so they took the ng tube out and she is taking all her feedings by mouth. They have taken all tubes out except her pic line for her IV antibiotics. She smiles more and more every day. This morning when I came in she was the happiest I've ever seen her. She is getting physical therapy 3 times a week (starting yesterday) and even from yesterday the therapist can see she has gotten much stronger. Her infection is doing so much better. All of her numbers that indicate infection continue to down- trend and most of them are back to normal status. Tuesday night she was out of heart block in normal sinus rhythm (130bpm) from midnight to 5:45am , then from 6:30-7:30am. Then the rest of the day she was in partial heart block, with every other beat being communicated. Last night we came in after supper and around 9pm she was out of heart block again (130bpm) and stayed there until 6am this morning. She seems to be staying in normal rhythm longer and longer, but she still isn't staying there which is discouraging. Because she had such a good night, the doctors decreased her epinephrine to see if her heart rate would do ok without it (she's been on a small dose of epinephrine, or adrenaline, since Monday when she was off the pacemaker and having such low heart rates). Right now she is in partial heartblock and having rates as low as 50bpm. So I'm not sure what they will do with that. I think we were all hoping for better results. Cale still has a gnarly cough so we've tried  to keep him out of her room- but it's really hard to keep him entertained and for us to all be apart. Please continue to pray for a miracle. Believe me, I know it is hard to pray the same thing over and over, but we continue to need you to flood heaven with this plea. For her to stay out of heart block completely next time she comes out. If she comes out of heart block permanently it changes everything. We can come home on antibiotics.  Please pray for Cale's cough/cold to go away so it isn't so tricky for us to be together. Thanks for your continued prayers.