Tuesday, August 21, 2018

No Gains No Regression

Willow had a good night. They kept her pacemaker at 60 and she maintained above that all night even when she was sleeping. Every other beat her heart is conducting in sync. The docs are all encouraged that there was no regression and her body isn't responding any different. The pacemaker specialist came in last night at 9pm and spoke with us. He said that right now they are just watching and analyzing multiple factors to see if she does alright with partial heart block. They have leads on her measuring if her heart is getting enough oxygen to her body's vital organs. If her body still maintains and does well in partial heart block, they will send us home and monitor it. If she seems to be struggling in the next couple of days, they will put in a pacemaker. Even though yesterday was a miracle and even the mention of going home makes me giddy, I still have a troubled spirit. I don't want to worry when she isn't attached to monitors about how she is doing. I don't really know the risks or dangers in being in partial heart block (I'll have to ask the next time a doctor stops in). I completely trust the doctors who are experts in their field. They would not send us home with risks. I just want her to come out of heart block completely and soon. Please continue to pray that with us. Also, please pray that her eating goes better.  The doctors and nurses are all impressed with how well she eats, but it isn't back up to the volumes she did before and the last couple of days she seems to be fussy when doing it, which makes it stressful on us. Lastly, Willow does physical therapy and occupational therapy each week. She has made such gains and is getting stronger. But we are entering our third week in the hospital with her on her back and she doesn't feel as strong. Her neck strength and other gains she made seem to be regressing a bit and that makes us sad. Please pray for her strength to return and not be all lost. Thank you for your continued prayers.

4 comments:

  1. Praying for you guys and your sweet baby girl right now.

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  3. Thanks for the updates so we can pray specifically - asking God to restore her whole body as well as her heart! Sending our love today!💕

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  4. My'mothers heart' also thinks it would be hard to bring my baby home with uncertainties of how she might not be ready to be home yet. Are you familiar with FMLA, Allie? It might allow you to stay home with Willow for awhile so that you can watch over her like I know you would want to do. We continue to pray for ALL of God's best for Willow and your family. Thanks for the update!

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